There was a recent study about the use of the diagnosis of ED NOS.

http://psychcentral.com/news/2008/02/07/expand-diagnostic-criteria-for-eating-disorders/1887.html

When the diagnosis was created, it appears that it was envisioned being used for people in recovery from either anorexia or bulimia, not for people whose first presentation didn't meet either criteria.

I'm certain that this has caused frustration for patients and clinicians alike. 

Trying to explain to family that you have an eating disorder, them asking, what you have, you replying, umm "Eating disorder NOS".

For clinicians, the label alone is not descriptive.  They have to have the patient describe which criteria of anorexia or bulimia are not fulfilled. 

People are then creating other terms such as exercise bulimia and orthorexia.  Binge eating disorder does actually appear in the DSM-IV, but as a diagnosis under Eating disorder NOS and research criteria are given for this.

My question to you...

1.  Were you given this diagnosis?
2.  How was it explained to you?
3.  Did you understand it?
4.  How did it make you feel?
5.  Do you feel the name should be changed?
6.  What name would you suggest?